"Voice of the NETS" Chris Carrino Reveals Struggle with FSHD
Launches The Chris Carrino Foundation for FSHD
April 8, 2011
EAST RUTHERFORD, N.J.—Chris Carrino, the radio voice of Nets Basketball for the last decade, has revealed publicly for the first time that he suffers from Facioscapulohumeral Dystrophy (FSHD), a form of muscular dystrophy. In an effort to raise money for this underfunded disease, Carrino, 40, has launched The Chris Carrino Foundation for FSHD.
FSHD is a genetic, muscle wasting disease effecting both children and adults in a variety of ways. Carrino first started to feel the effects of his condition in his college years at Fordham University and was diagnosed in his early twenties.
The Chris Carrino Foundation for FSHD is a 501(c)(3) non-profit dedicated to the effort of eradicating the life-altering effects of FSHD. It is an independent, volunteer Foundation providing funding to research scientists in the hope that stimulating scientific research in the field of FSHD will lead to an effective treatment and eventually a cure.
“I know what it’s like to hear a doctor tell you that you suffer from a progressive, debilitating disease with no proven treatment options and no cure,” Carrino said. “From that point on, your life is never the same. Our mission is to promote awareness, provide hope and inspiration, and ultimately find a treatment and a cure for those suffering from FSHD.”
The Foundation (formerly the Long Island Foundation for FSHD) is a collaboration with co-chairperson Jennifer Burgess, a dedicated mother from Long Island whose life has also been touched by FSHD.
“Patients are sent home from a doctor’s office with no prescription, no treatment and no hope,” Burgess said. “The Chris Carrino Foundation for FSHD intends to change that.”
For more information please log on to www.chriscarrinofoundation.org, or email Jenniferburgess@chriscarrinofoundation.org.