Laker for a Day: Jonathan KochJune 8, 2017
Jonathan Koch stood on the hardwood floor at Staples Center, swishing shots at the same basket where Laker legends have delivered many awe-inspiring performances.
For Jonathan, an entertainment executive who received a hand transplant at UCLA six months earlier, this was a made-for-TV moment even he couldn’t script.
Just two years earlier, a sudden illness led to the destruction of tissue in Jonathan’s feet and hands, threatening to take his limbs – and his life.
“I got a text that basically said, ‘Call me. Very serious,’” recalls his wife, Jennifer. “I was told that he had a 90 percent chance of dying. He had multiple organ failures, and from that loss of oxygen going to his hands and feet, which in essence made his hands and feet die.”
Following treatment at two out-of-state hospitals and knowing that his left hand would need amputation, Jonathan sought a rare hand transplant at UCLA. He hired a personal trainer and kept himself in peak shape to give himself the best opportunity for a successful recovery, all the while dealing with constant pain.
In October 2016, at age 51, a team of surgeons led by Dr. Kodi Azari, surgical director of the UCLA Hand Transplant Program and a professor of orthopaedic surgery and plastic surgery, performed the operation to replace Jonathan’s left hand. The surgery took about 17 hours and required perfect precision to connect his nerves and tendons.
“Functionality came almost in flashes. One second I couldn’t do it, and then the next second I could move my thumb. And it would happen like every 10 minutes,” Jonathan says.
Jonathan, a husband and father from Los Angeles, has mixed emotions because he knows none of this would have been possible without the incredible gift of the donor and their family members who agreed to make the hand available for transplantation. He remains forever grateful for the life-changing donation.
As with any organ transplant, Jonathan must now take immunosuppressant medications to help prevent his body from rejecting the new hand. He also is working with occupational therapists at UCLA to improve his movement and muscle memory. Already, Jonathan has used his new hand to hold a jump rope, unscrew a bottle top and swing a tennis racquet.
Jonathan’s most impressive performance since the transplant might have come before the Lakers game against Grizzlies on April 2. That’s when Jonathan showed off his healthy shooting stroke as the UCLA Health Laker for a Day. He participated in the Jr. Lakers Shooting Contest, helping a lucky young fan win a scholarship to the camp this summer.
“Just watching him with his first shot swish a basket really means the world to me,” says Dr. Azari, who joined Jonathan and his friends at the game.
Even for someone who has helped bring many reality shows to TV, Jonathan’s journey has been quite the Hollywood story – and he looks forward to sharing it more in hopes of inspiring others.
“Being Laker for the Day means the world to me,” he says. “Because it means the world has the opportunity not only to experience what’s possible in this medical miracle, but also what’s possible within themselves to do whatever it is to do what they set out to do.”
Laker for a Day: Jamil NewirthMay 11, 2017
Jamil Newirth was told he had 17 months to live. That was five years ago.
Today, thanks to doctors at the UCLA Brain Tumor Center, Jamil is healthy and taking in all that life has to offer – including attending a Lakers game. With the partnership between the Lakers and UCLA Health, Jamil enjoyed a behind-the-scenes experience as the UCLA Health Laker for a Day on March 26th at STAPLES Center.
It has been quite a journey for Jamil, a long-time Laker fan who lives in Hawaii and travels frequently to receive care at UCLA. He started experiencing headaches and nausea in May 2012. He went to the emergency room and doctors diagnosed him with a glioblastoma multiforme brain tumor, telling him he might have little time left to live.
Jamil received radiation treatment for three months and chemotherapy for a year before undergoing successful surgery at the hands of Dr. Linda M. Liauat UCLA. "After the brain tumor surgery when I saw my MRI, my family and I were very relieved, kind of joy and hope at the same time," Jamil says.
Since his surgery, Jamil has passed the bar exam to become a lawyer and is able to partake in one of his favorite Hawaiian activities: surfing. His positive outlook and zest for life was certainly on display during his game-day experience, which included taking pictures with the Laker girls and watching pregame warmups courtside.
For more information about UCLA Health services, visit uclahealth.org
Laker for a Day: Julian WhiteMay 3, 2017
Julian White says he has never let cancer stop him from doing anything. So, as a lifelong Lakers fan, of course nothing would prevent him from enjoying a behind-the-scenes game experience as the UCLA Health Laker for a Day.
Doctors diagnosed Julian with T-cell acute lymphoblastic leukemia, an aggressive form of blood cancer, in January 2016. He has been receiving treatment at UCLA Mattel Children’s Hospital ever since, undergoing chemotherapy, blood and platelet transfusions, diagnostic imaging and other treatment procedures, including spinal taps and bone marrow biopsies.
“It’s been a journey,” says Julian, now 16.
Julian has been unable to attend school regularly due to a weakened immune system from the treatment. That often means restricting visitors at his home to protect his health. “The toughest thing about it is not being able to really do anything about it and just hoping, hoping, that he does not get discouraged,” says his father, Ron White, who joined Julian at the Lakers game against the Minnesota Timberwolves on March 24th.
Julian attended games as a youngster with his father, so coming back to STAPLES Center was a symbolic way to celebrate the strength and determination he has displayed throughout his recovery. He toured the Chairman’s Lounge, met Lakers co-owner Jeanie Buss and watched pregame warm-ups courtside before being recognized during a halftime presentation.
Since first coming to UCLA Mattel Children’s Hospital, Julian and his family have met many members of his interdisciplinary care team, building relationships that no doubt will last beyond his three-year treatment plan. Julian hopes his experience can have a positive impact on others who are facing a similar recovery process.
“Being Laker for a Day means that I have an opportunity to give kids who might have what I have hope,” he says. “Or give them someone to look up to, saying, ‘Oh, he did it. So I can do it.’”
For more information about UCLA Mattel Children’s Hospital, visit uclahealth.org/mattel
Laker for a Day: Walter SanchezMarch 10, 2017
In many ways, Walter Sanchez looked like any other father chasing his two young daughters around the court before a recent Lakers game. Except Walter's life started out anything but normal.
Walter was born with only one ventricle in his heart, so instead of two ventricles pumping blood – one to the lungs, another to the body – he has just one to the body. Thanks to doctors at UCLA Health, however, Walter was able to undergo a procedure that allows him to lead a relatively normal life.
"The surgery essentially linked his veins up with his pulmonary arteries," says Dr. Jamil Aboulhosn, director of the UCLA Adult Congenital Heart Disease Program.
Walter enjoys spending time with his two charismatic daughters, 7-year-old Samantha and 8-year-old Danielle, who infuse energy and enthusiasm into his daily activities. That was especially evident during their behind-the-scenes tour of Staples Center, where they were treated to dinner in the Chairman's Lounge and had an opportunity to meet and mingle with Lakers co-owner Jeanie Buss before the Valentine's Day game against Sacramento.
"What keeps me going is I have my two daughters," Walter says. "I take care of myself so I can provide for them. As of right now my heart is repaired and, God willing, I won't need a heart transplant."
Dr. Leigh Reardon, director of Transitional Cardiac Care at UCLA, says medical advances developed at UCLA and other research centers now allow people like Walter to recover and enjoy everything that life has to offer – including taking in a Lakers game.
"UCLA was one of the first places in the world to treat adults with congenital heart disease, and we're one of the premier places for adults with congenital heart diseases in the world," Dr. Reardon says. "And because of advances in medicine, we've been able to let people live full and productive lives, have families, exercise and live their dreams."
For more information about UCLA Health, visit uclahealth.org
Laker for a Day: Dawn Dorland PerryFebruary 27, 2017
Dawn Dorland Perry wanted nothing more than to soothe the suffering of a stranger. Touched by an article she read about living kidney donations, Dawn decided to take action with a selfless and life-saving act of her own.
On June 24, 2015, Dawn donated a kidney to a stranger experiencing renal failure. Hours after her kidney retrieval surgery at Ronald Reagan UCLA Medical Center, that stranger — a father in the Los Angeles area — received a second chance at life.
"I realized I had something I didn't need that someone else desperately needed," Dawn says. "And I knew that if I didn't donate my kidney one day, it would probably nag at me my entire life."
The Lakers invited Dawn and Dr. Jeffrey Veale, who performed the surgery at UCLA, to a game against the Detroit Pistons at Staples Center on January 15. They were also treated to a dinner at the Lexus Club followed by a behind-the-scenes tour of Staples Center before the game.
Dawn had hoped all along that a member of her recipient's family would also donate a kidney (that did not match with their loved one) to another stranger. Sure enough, inspired by her extraordinary act of kindness, the recipient's wife donated the gift of life to a young mother in Oregon the same day as Dawn's procedure.
While many are motivated to donate a kidney to a friend or relative in need, Dawn recognized the struggle for strangers is just as real. She had read that wait times in California for a deceased-donor kidney could be excruciatingly long, and she knew that living-donor kidneys tended to last longer after transplant. With advances in medical technology making one of her kidneys safely available to someone who needed it to survive, Dawn refused to wait any longer.
She had just completed a graduate degree and relocated to Los Angeles for her husband's job. Financial stability, a loving spouse and living a short distance from UCLA's campus and hospitals made Dawn's desire to help someone materialize quickly.
"I saw her just after she woke up and the very first thing Dawn told me was, ‘I'm really glad I did this,'" says her husband, Chris Perry. "And that blew me away."
Dawn feels happy, healthy and grateful each day to be in a position to give, and she encourages others to do what they can to help someone in need.
"Chances are that in your lifetime you will know someone that has been impacted by renal failure, and you yourself might consider giving your kidney," Dawn says. "And if living donation isn't for you, everyone can help solve the organ shortage by registering to become an organ donor, and you can do that today."
Laker for a Day: Sarai SanchezNovember 30, 2016
Lakers fans, meet Sarai Sanchez: A brave and fun-loving 15-year-old who has spent a lifetime battling the complications of a spina bifida diagnosis, including kidney disease. Sarai underwent a life-saving kidney transplant in June of 2015 at Mattel Children's Hospital UCLA – and her dad was her donor.
Sarai is a passionate basketball fan, and even spent the night of her transplant watching the NBA playoffs with her father as they awaited their surgeries at Ronald Reagan UCLA Medical Center.
Sarai arrived early for November 20's Lakers vs. Bulls game to watch some of her favorite Lakers warm up at Staples Center. After a tour of the facility, Sarai and her family were invited to have an exclusive dinner in STAPLES Center. And to top it all off, Sarai was able to enjoy the game courtside.
"Being a ‘Laker for a Day' means so much to me because it's a great opportunity for me to distract my mind and forget about everything I've gone through this past year," Sarai says. "My favorite part of the day was sitting so close to all the action!"
To learn more about Mattel Children's Hospital UCLA, visit uclahealth.org/mattel.